Winters Center for Autism is committed to supporting people with ASD and their families to access the information and resources needed to stay connected and well informed in the realm of Autism. Below is a list of select organizations dedicated to gathering and sharing valuable information and referrals pertaining to ASD.
The Association for Science in Autism Treatment promotes safe, effective, science-based treatments for people with autism by disseminating accurate, timely, and scientifically sound information, advocating for the use of scientific methods to guide treatment, and combating unsubstantiated, inaccurate and false information about autism and its treatment. https://www.asatonline.org/
Centers for Disease Control and Prevention’s National Center for Birth Defects and Developmental Disabilities (NCBDDD) strives to advance the health and well-being of our nation’s most vulnerable populations. https://www.cdc.gov/ncbddd/autism/index.html
My Autism Team is a social network for parents of kids with Autism dedicated to fostering exchange of emotional support and everyday advice amongst fellow parents. https://www.myautismteam.com/
National Institute of Mental Health is the lead federal agency for research on mental disorders. NIMH is one of the 27 Institutes and Centers that make up the National Institutes of Health (NIH), the largest biomedical research agency in the world. NIH is Part of the U.S. Department of Health and Human Services (HHS). https://www.nimh.nih.gov/health/topics/autism-spectrum-disorders-asd/index.shtml
Organization for Autism Research uses science to address the social, educational and treatment concerns of self-advocates, parents, autism professionals and caregivers. https://researchautism.org/
The Daniel Jordan Fiddle Foundation Resource Guide is a user friendly format of a complex informational system developed by Graduate Fellows at Rutgers School of Social Work as means of providing a community service that enhances access to a list of resources pertinent to adult autism. https://adultautism.rutgers.edu/
NYABLE - (ABLE) Act of 2014 allows those with disabilities to save for qualified disability expenses without the risk of losing their benefits from assistance programs like SSI and Medicaid. NY ABLE is an ABLE program designed specifically for New York residents. NY ABLE accounts give earnings the ability to grow tax-deferred, and allow savings to be withdrawn tax-free for qualified expenses. https://www.mynyable.org/
Family Autism Network - FAN is a network connecting children, young adults and families in local communities to foster real friendships for both children and parents. https://www.familyautismnetwork.org/
Autism Society– Autism Source: A comprehensive nationwide database of current, credible and reliable resources obtained through collaboration amongst autism organizations and professionals throughout the United States. http://www.autismsource.org/ For information on services, supports and referrals call a toll-free number 800-3-AUTISM 9:00am - 9:00pm, Monday-Sunday or email firstname.lastname@example.org
Autism Speaks – Resource Guide: A nationwide database containing over 45,000 resources connecting individuals and families with local organizations that service a variety of needs from early intervention through adult care. It is searchable by state or by zip code. Resources are organized in over 75 categories. https://www.autismspeaks.org/family-services/resource-guide
Local Resources for Navigating Adult Services
NY CONNECTS – SUFFOLK INDEPENDENT LIVING ORGANIZATION 631-730-3737
Suffolk Independent Living Organization 3253 Route 112, Bldg. 10, Suite 5 Medford, NY 11763 P: 631-730-3737 www.siloinc.org
NY Connects - will match you to the right long term supports and services in your community.
Find care and support
Understand care options
Find supported employment programs
Apply for Medicaid and other benefits
THE TRAID PROGRAM – LONG ISLAND COMMUNITIES OF PRACTICE 631-668-4858
Facilitates access and acquisition of assistive technology in the four domain areas of education, employment, community living and information technology.
Centers can provide individuals with information about assistive technology, training, demonstrations, device loans, technical assistance and advocacy on how to obtain and implement the technologies.
An electronic matching program with seven states including New York.
Through participation in this multistate database, people are able to advertise the equipment they would like to sell or donate. http://www.getatstuff.com/
ACCES -VR – ADULT CAREER AND CONTINUING EDUCATION SERVICES – VOCATIONAL REHABILITATION 631-727-6496
Adult Career and Continuing Education Services - Vocational Rehabilitation P: 631-727-6496 http://www.acces.nysed.gov/vr/district-offices Target Population - Adults (post-secondary) with a documented permanent disability that impacts their ability to seek, secure and maintain employment and High School students two years prior to expected exit.
Physical or mental impairment
Impairment impedes employment
Ability to benefit from services
Services are necessary to overcome employment barriers
Vocational education (e.g. college or technical/business school)
Job placement services
Job skills training
Driver evaluation training
Work related books, tools, licenses and rehab technology
Youth Employment Services (14-25)
How to Access Services
Complete signed application.
Documentation of disability.
Availability to participate in assessment and training process.
Comply with requests of VR counselor.
NYSCB – NEW YORK STATE COMMISSION FOR THE BLIND 516–743–4188
New York State Commission for the Blind P: 516-743-4188 https://ocfs.ny.gov/main/cb/Default.asp Target Population - Children and adults who are legally blind are eligible for vocational rehabilitation services.
Legally blind visual acuity is 20/200 or less in the better eye Or Vision field of 140 degrees or less in the better eye
Have one or more physical or mental impairments that keep them from working
Need rehabilitation services to get or keep employment
Benefit from services
Training for Employment
Business Enterprise Program
Programs for older adults
Counseling and guidance to family
How to Access Services
Complete signed application Documentation of disability
Participate in initial interview
If eligible, work with counselor to develop a plan for services and/or employment
OPWDD – OFFICE FOR PEOPLE WITH DEVELOPMENTAL DISABILITIES 631-434-6100
Office for People with Developmental Disabilities P: 631-434-6100 www.opwdd.ny.gov/ Target Population - Children and adults with a documented developmental disability
Documented developmental disability (prior to age 22)
Fetal Alcohol Syndrome
Prader Willi Syndrome
Any other condition that causes impairment in general intellectual functioning or adaptive behavior
Parent Advocacy training
Family supports services and financial counseling
Community support service (in home support, respite)
Environmental Modifications (adaptive equipment)
How to Access Services
Phone call to DDRO
Documentation of a developmental disability
Complete Admission packet submit to local DDRO eligibility determination
Target Population - Individuals with disabilities and elderly individuals.
All disabilities - check with local provider regarding documentation requirements.
Client Assistant Program
Information and referral
Living skills training
How to Access Services
Contact your local ILC
The Winters Center for Autism is committed to enhancing the quality of life for adults with autism through job creation, training and placement while helping businesses to develop and implement programs to employ people with autism.
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